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The following annual report
from King County, Washington, home of the city of Seattle, shows
how psychiatric drug treatment does not lead to recovery. Of
over 9300 patients treated by the county in 2002, only 5
individuals recovered. The report for 2001 is similar
KING COUNTY DEPARTMENT OF COMMUNITY AND HUMAN SERVICES
Mental Health, Chemical Abuse and
Dependency Services Division
King County Ordinance #13974
Second Annual Report: Recovery Model [newsbanner.htm]
BACKGROUND
The Metropolitan King County Council passed
Ordinance #13974 on October 16, 2000. This ordinance is designed to
promote recovery as an achievable outcome for adult consumers of the
publicly funded mental health system in King County. The ordinance
recognized that recovery is both a treatment philosophy and a
process characterized by consumers moving toward participation in
age-appropriate roles, including living independently, working, and
having less dependence on the mental health system.
The ordinance required the Mental Health, Chemical Abuse and
Dependency Services Division (MHCADSD) to submit:
A report in April 2001 that described steps the
Division would take in redirecting the system toward recovery
outcomes A written annual report to the Council
that describes the performance of the mental health system toward
achieving recovery outcomes, with calendar year 2001 as the
evaluation baseline period.
This report addresses the second requirement.
REPORTING REQUIREMENTS
The ordinance stipulates the population MHCADSD
is expected to evaluate on an annual basis. The population of
interest is consumers who:
Received outpatient benefits or residential services during
the previous calendar year
Were aged 21-59 years during the reporting period
Completed at least one benefit period during calendar year
01/01/2002 - 12/31/2002
The ordinance provides definitions of "recovery
categories". These definitions are:
Dependence and dependent: experiences significant disability, is not
employable, is served the MH system, has a Global Assessment of
Functioning (GAF) score of 50 or below. Less dependence and less
dependent: some disability, progress toward recovery, improved
self-esteem, enhanced quality of life, a GAF score between 51 and
80 Recovered: Ø is engaged in
volunteer work, or pursuing educational or vocational activities, or
employed full or part-time, or engaged in other culturally
appropriate activities, and Ø lives in independent or supported
housing, and Ø is discharged or receiving infrequent maintenance
services, and Ø has a GAF score of 81 or above
OUTCOMES AND ANALYSIS
In addition to evaluating consumers' recovery
status, the ordinance requires MHCADSD to specifically evaluate
certain outcome measures. These outcomes, which are central to
principles of recovery and indicate involvement in adult life roles,
are:
· Level of functioning
· Employment
· Housing
MHCADSD was able to use the existing consumer database when
measuring performance on these outcomes.
The ordinance includes a set of six questions that must be responded
to in the annual evaluation of recovery outcome performance. This
section provides an analysis of outcomes achieved from outpatient
benefits during 2002. Although the 2001 report included an analysis
of outcomes achieved from long-term Rehabilitation (LTR) benefits,
we are removing that analysis from this report. During 2002 an LTR
benefit, unlike outpatient benefits, did not include a specified
term or requirements for benefit renewal. This benefit serves some
of our most severely mentally ill consumers, many of whom were
discharged from institutions. Most consumers served with an LTR
benefit receive this level of care for an extended period of time,
so there is insufficient outcome data from which to draw valid
conclusions.
Outcomes: The definitions and perameters described in the ordinance
were used to develop a database that includes information on 9,302
adults who completed a tier benefit during calendar year 2002. There
is an increase of 1,471 people in this year's data set from the
previous year, because there are more people enrolled in the
outpatient system and overall data quality has improved. The table
and charts that follow respond to each of the questions found in
ordinance language.
Table 1 responds to questions 1-4
Table 1. Change in Recovery Status for people served with outpatient
tier benefits
Ending Recovery Category
Starting Recovery Category Dependent Less Dependent Recovered Total
Dependent 6,433 573 1 7,009
Less Dependent 561 1730 4 2,295
Total 6,994 2303 5 9,302
Question 1 asks: How many consumers at the beginning of their
benefit period were categorized as dependent, or less dependent. Of
the 9,302 consumers:
· 7,009 (75%) began their benefit as dependent
· 2,295 (25%) began their benefit as less dependent
Question 2 asks: How many consumers at the end of their benefit
period were categorized as: dependent, less dependent, recovered and
receiving maintenance level of services, recovered and discharged,
or left services for another reason. Of the 9,302 consumers:
· 6,994 (75%) ended their benefit as dependent
· 2,303 (25%) ended their benefit as less dependent
· 5 (<1%) ended their benefit as recovered
3,009 consumers left services. Of these:
· 1,955 (65%) were dependent at exit
· 1,048 (35%) were less dependent at exit
· 5 (<1%) were "recovered" at exit
Question 3 asks: By "recovery category", how many
consumers progressed, regressed, or remained unchanged.
7,009 clients began their benefit period as dependent. Of these:
· 6,433 (92%) remained dependent at the end of their benefit
· 573 (8%) progressed to less dependent
· 1 (<1%) progressed to recovered
2,295 clients began their benefit period as less dependent. Of
these:
· 561 (24%) regressed
· 1,730 (75%) remained unchanged
· 4 (<1%) progressed to recovered
Overall, of the 9,304 consumers:
· 561 (6%) regressed
· 8,163 (88%) remained unchanged
· 580 (6%) progressed
Question 4 asks: For those consumers who changed, what was the
extent of progression or regression (by recovery category)?
Of the 7,009 consumers who began their benefit as dependent:
· 573 (25%) improved by one recovery category
· 1 (<1%) improved by two recovery categories
Of the 2,295 consumers who began their benefit as less dependent
· 4 (<1%) improved by one recovery category (recovered)
Question 5 asks: What percent of consumers have improved housing
compared to the beginning of their benefit period? Note: the
category labeled "All Diagnosis" is inclusive of all
consumers.
1,944 consumers had the potential to improve (i.e., did not begin
their benefit with the residential status of "independent"
housing - the highest housing "level"). Of these:
· 18% (n = 74) of the consumers with a diagnosis of schizophrenia
improved their housing status during the course of their benefit
· 28% (n = 115) of those diagnosed with depression improved
· 23% (n= 9) of those diagnosed with dysthymia improved
· 28% (n = 86) of those diagnosed with bipolar disorder
improved
As an overview, 22% of all individuals with potential to enhance
their residential status showed improvement by the end of their
benefit, regardless of diagnosis.
Question 6 asks: What percent of consumers have improved daily
activities compared to the beginning of their benefit period?
5,417 consumers had the potential to improve (i.e. did not start
their benefit with the highest level of activity status). Of these:
·
28% (n = 1,090) of the consumers diagnosed with schizophrenia
had improved activity status
· 28% (n = 1,301) of the consumers diagnosed with depression
improved
· 26% (n = 204) of the consumers diagnosed with dysthmia improved
· 28% (n = 936) of the consumers diagnosed with bipolar disorder
improved
As an overview, 28% of all consumers with potential to improve their
activity status showed improvement by the end of their benefit,
regardless of diagnosis.
While few consumers reached the status of recovered, many more did
demonstrate progress toward recovery. Of the 9,272 consumers
included in this report:
· 5% (n = 427) improved their residential status
· 16% (n = 1,501) improved their activity status
· 29% (n = 2,998) have an improved GAF score, OR and improved
residential status, OR an improved activity status. Each of these
elements is used to provide the composite definition of
"recovered" in the ordinance.
Conversely, 22% had a decline in their GAF score, OR a decreased
residential status, OR a decrease in their activity status. It is
not clear whether improvement or deterioration in the outcome
measures relate to the cyclical nature of mental illness, treatment
effect, or other factors.
DISCUSSION
Consumer impairment: The funding for mental
health services in King County is primarily established by the state
legislature. The legislature has decreased the level of funding to
King County in the last two sessions, which will result in a $50
million reduction over a six year period. Reductions of this
magnitude have necessitated modifications to the mental health
system, including reducing access to people without Medicaid
benefits. In addition, the State Mental Health Division is closing
wards at the state hospital, resulting in clients returning to the
community who are more impaired than in the past. The mental health
system is also reaching out to persons being released from jails and
prisons who need treatment for mental illness. Each of these factors
suggests King County is serving clients who have a number of
characteristics that create considerable challenges for the
outpatient system.
Data considerations: This report provides recovery status
information about a portion of individuals who received publicly
funded mental health services in King County. Overall, 33,246
individuals were served by the King County mental health system
during 2002. (See Attachment 2) Ordinance # 12974 specifically
required information about individuals who completed a benefit
during the previous calendar year. Report criteria, therefore,
exclude certain individuals from the analysis of outpatient
benefits. These individuals are:
· persons younger than 21 and older than 59 years of age
· persons who received "carve-out" , crisis, or inpatient
services only
· persons who did not complete a benefit
· persons for whom incomplete or invalid data was submitted
regarding their housing and/or activity status
Diagnostic considerations: Ordinance # 13974 required outcome
reporting about consumers with specified diagnoses (schizophrenia,
depression, dysthymia, and bipolar disorder). In 2002, approximately
two-thirds of consumers were classified with these diagnoses.
Details about diagnostic classifications used for this report are
available upon request.
Proportion of consumers residing in independent housing: Our
analysis revealed a large portion of consumers residing in
independent housing (7,384, or 72%, at the beginning of their tier
benefit, and 7,883, or 77%, at the end). This means that only 2,892
of the consumers analyzed for this report had the potential to
improve their housing. However, there are mitigating factors to
consider:
· Consumers may choose to live independently to avoid the rules,
expense, or social closeness required of persons residing in
supervised living situations.
· Some group living situations will not admit low functioning
persons with problematic behaviors and/or histories.
· Although people may be categorized in the data set as
"independent", in fact they may be receiving significant
support from their family, treatment providers, and other community
members, which can help an otherwise low-functioning person to live
on his/her own.
· A count of consumers living in various residential
"levels" does not address whether the consumers are
satisfied or successful in maintaining their housing.
Implementation of the "Recovery Model": Although
challenged by numerous factors, MHCADSD, providers, and consumers
have made inroads toward reshaping attitudes and beliefs about the
potential for consumers to recover from mental illness. Three
specific initiatives are described below:
Recovery Conference: In September 2002, MHCADSD sponsored a
conference: "Creating a Culture of Recovery" in
partnership with the Greater Seattle Chapter of the Washington
Advocates for the Mentally Ill and United Behavioral Health. Over
200 consumers, advocates, providers, administrators and public
officials attended the full day conference. Workshops included
discussions on establishing a definition for recovery; consumer and
family responsibilities; voices of recovery (consumer lead panel in
which consumers shared their own recovery stories); recovery in the
delivery of services; and innovations and commitment to recovery for
organizations and systems.
Vocational Services: In recognizing that employment is one of the
pillars of recovery for people with mental illness, MHCADSD
dedicated funds in 2002 to support the development of vocational
programming. A vocational services plan for clients enrolled in the
King County Mental Health Plan was developed. The plan incorporated
significant input from consumers and other stakeholders, including
vocational services staff working in mental health agencies and
other vocational experts, and includes the following elements:
· A reorientation of the MHCADSD mission statement to emphasize the
value of vocational services and the commitment to support clients
in their pursuit of employment
· Education of all parties regarding mental illness and work,
including clients, line staff, medical staff, and management
· Development of policies and procedures to support vocational
services
· Assurances that vocational services will be based upon
evidence-based practice
· Development of Regional Employment Services and Placement Centers
(RESPC) to provide a full array of supported employment services,
including motivational enhancement groups, long term employment
supports and peer support activities.
· Application to the Department of Vocational Resources for
Innovation and Expansion start-up funds for the centers described
above
Vocational initiatives planned for 2003 include issuing a Request
for Proposal (RFP) and a subsequent contract for establishment of
the RESPCs, and developing a system-wide educational process that
builds on the Recovery Conference and focuses on employment and
mental illness.
Residential Services and Supports: The MHCADSD reviewed its
residential services policy during 2002. This process was informed
by two studies that were completed during the summer and fall of
2002:
1. The residential services study focused on the licensed
residential facilities funded by the MHCADSD and the supported
living programs serving MHCADSD clients. The purpose of the study
was to identify the skills and supports clients need in order to
live in supported (non facility-based) housing.
2. The second study analyzed the readiness of consumers to move from
facility-based to more normative housing including options featuring
greater independence, and found that 30% of people residing in
facilities appeared to be ready to move to less restrictive housing.
In December of 2002 the MHCADSD drafted a statement of policy intent
for residential services. The new policy is based on maximizing
client independence, meeting each client's individualized needs,
assuring informed client choice, providing services that support
clients in their recovery, and funding flexibility. In a significant
departure from the previous residential policy, the MHCADSD will
gradually shift resources away from facility-based housing and
develop an increasing number and variety of supported housing
programs. Funding for over 300 residential beds will be phased out
over the next three to five years and redirected to services that
support consumers to live in independent housing. National evidence
based research and local findings indicate that most clients want to
live on their own (with supports) in normative housing and that
supported housing models result in more positive outcomes for
clients than highly structured group housing models.
Housing initiatives planned for 2003 include working with
stakeholders to implement the new housing policy.
CONCLUSIONS
Ultimately the success of a recovery-based model
of care can only be assured through full commitment and
participation by all stakeholders. Each must embody the belief that
persons with mental illness can and will recover if necessary
individualized supports are available to them. Although the publicly
funded mental health system in King County - and across the United
States - is stressed due to reductions in budgets that fund mental
health services, the system must still strive to build a culture
focused on principles of recovery. Over the past year MHCADSD has
worked to build the foundation for a recovery model through the
initiatives described above. The level of participation and support
from stakeholders clearly shows that this is a shared vision and
effort.
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