When the Seanad reconvenes this week, ECT will be debated as an issue of human rights. Dr Michael Corry says there is a lack of information available on the procedure.
Since June 21, the abolition of ECT has
become a human rights issue, when a Private Members Bill was debated
for two hours in Seanad Eireann. It was proposed by Green Party
senators Deirdre de Burca and Dan Boyle, and the Independent David
Norris.
The Bill deals with two provisions of the Mental Health Act 2001 (lobotomy, and the involuntary use of
ECT). The debate will continue this week when the Seanad reconvenes.
No intelligent and constructive debate can occur in the absence of statistics on ECT use in Ireland. The last recorded figures (of 859) were published by the Health Research Board in the document Activities of the Irish Psychiatric Services 2003. No distinction was made between voluntary and involuntary use.
Of some note, however, was a marked disparity of numbers between the different former health boards. ECT was prescribed nearly five times more frequently by the South-Eastern Health board (38.7 per 100,000 population aged 16 or over), with the lowest being the Southern Health Board (8.4). In the same publication for 2004 or 2005, all facts and figures on ECT were omitted.
The Mental Health Comm-ission (MCH), an independent statutory body established in 2002 under the provision of the Mental Health Act 2001, took over the responsibility of inspection from the Health Research Board. In its first annual report in 2004, in a 548-page tome, the only reference to ECT was one single sentence referring to the variations between the health boards as mentioned above, but numbers receiving the treatment were omitted.
In the MCH’s second annual report of 140 pages (2005), enclosing a CD-ROM of 718 pages dedicated to a report by the Inspector of Mental Health Services, the use of ECT was documented in four pages. The contents referred to staffing, quality of equipment and ward layout. No figures.
In the third annual report of 256 pages (2006) enclosing a CD-ROM of
519 pages by the Inspector, five pages were devoted to the use of
ECT. Again, figures were omitted.
In this year’s recently published fourth annual report of 408 pages,
enclosing a CD-ROM of 614 pages by the Inspector of Mental Health
Services, four pages were devoted to the use of ECT and figures were once again omitted.
This most recent document deserves scrutiny as it demonstrates clearly a negligence regarding provision of vital statistical information necessary for research, evaluation and analysis. This omission of data flies in the face of their stated ‘Strategic Priority Number One: to promote, develop and evaluate the implementation of high standards of care and treatment within mental health services’.
Their mandate, mentioned in the much-lauded Vision for Change document (2006), is ‘to promote and enhance knowledge and research on mental health services on treatment interventions’.
Here are some examples of the informational black hole to which I refer. Acute psychiatric unit, St Aloysius Ward, Mater Misercordiae Hospital: “The number of people receiving ECT was low.”
St Patrick’s Hospital: “The ECT register was not available on the day of inspection.” This was in spite of the fact that they had been notified of the days of inspection, April 18 and 24, 2007.
St Edmundsbury Hos-pital: “The Inspectorate was informed that ECT was not used in the hospital.” Strictly speaking true, but the information that their patients were being transferred to St Patrick’s Hospital for ECT treatment was not reported, nor the numbers.
Elm Mount Unit, St Vincent’s University Hospital: “The provision of ECT complied with the rules for ECT.”
St Senan’s Hospital, Wexford: “The ECT register was missing and was not located by the staff during the inspection. It was not reviewed.” (The date of inspection had been announced to be occurring on July 23 to 25, 2007).
It is abundantly clear that the Mental Health Commission has failed to meet the provisions of the Mental Health Act 2001, which it was mandated to undertake. Such lack of collation of figures would not be tolerated in any other branch of medicine, and is internationally embarrassing.
Since ECT is such a controversial procedure, it is imperative that we have basic statistics such as numbers receiving it, diagnosis, length of hospital stay, voluntary or involuntary status, age distribution, frequency of administration, adverse effects such as acute organic brain syndrome and deaths. Research shows that ECT threatens people’s survival if they are elderly (Black et al., 1989. Kroressler and Fogel, 1993).
The Royal College of Psychiatry acknowledges this, while simultaneously trivialising the reality of side effects. Its patient fact-sheet, on its online service, states: “Some patients may be confused just after they awaken from the treatment, and this generally clears up within an hour or so. Your memory of recent dates may be upset and dates, names of friends, public events, addresses and telephone numbers may be temporarily forgotten.
“In most cases, this memory loss goes away within a few days or weeks, although sometimes patients continue to experience memory problems for several months. ECT does not have any long-term effects on your memory or intelligence.”
However, this last statement is nothing short of ‘Humpty Dumpty’ science, reflecting what Humpty said to Alice in Wonderland, “When I use a word, it means just what I choose it to mean, neither more nor less.” This flies in the face of abundant worldwide research and surveys documenting beyond any doubt that memory loss and cognitive deficits can be long term and irreversible.
The first such large-scale follow-up study of the cognitive outcomes of 347 patients treated with ECT, using numerous standardised psychological tests, was carried was by Dr Harold Sackiem, (a renowned prior advocate of ECT) and his colleagues in Columbia University, New York, published in the journal Neuropsychopharmacology, in 2007.
This landmark study revealed ‘adverse cognitive effects’ – irreversible impairments of memory, learning and overall mental function, indicating permanent brain damage with persistent abnormalities on their EEGs, still present six months after the last treatment.
Nearer to home, Dr Jim Lucey, medical director of St Patrick’s
Hospital and Maeve Mangaong, a research psychologist (in Advances in
Psychiatric Treatment 2007) stress the need for cognitive
rehabilitation after ECT as a way of dealing
with documented persistent cognitive and emotional adverse reactions
and brain damage. What is the logic of rehabilitating an iatrogenic
doctor-prescribed head-injury?
Why the silence from all the professionals who bear witness to shock
treatment damage – anaesthetists, psychologists, psychiatric nurses,
occupational therapists, and even the neurophysicians whose opinions
are sought when serious post-shock complications occur? This
dehumanises the profession and its allied disciplines.
The proponents fall back on ECT preventing suicide: this claim has been investigated numerous times and found to be untrue (Szasz 1974, Greenberg 1974, Grimm 1976, Avery and Winoker 1976, Breggin 1979, 1991, 1992, Coleman 1984, and Freiberg 1991).
All found that ECT makes someone more
likely to commit suicide. How many thousands of scientific papers and
surveys on the dangers and inappropriateness of ECT, and
personal testimonies published as to its harmful effects, are required
to have it abolished? Why does such powerful evidence fall on deaf
ears? Why are healers failing to understand the devastating toll paid
in terms of human suffering?
ECT has to be regarded as a major
psycho-surgical procedure – the passing of electricity up to 400 volts
through the human brain for the purposes of inducing epileptic
seizures. It more rightfully belongs in a neurosurgical operating
theatre, with all the incumbent emergency facilities, monitored by
neurophysicians, with pre and post-treatment cognitive assessment.
It would not happen in this context as staff would not take on the responsibility of masquerading brain damage as treatment and risk certain litigation.
I call on John Maloney TD, Minister of State with Special Responsibility for Mental Health to call a moratorium on the use of ECT, until such time as an independent scientific body can establish the ratio of risks to benefits, to license it on grounds of safety, and to answer the omission of current statistics by the statutory bodies of both the Health Research Board and the Mental Health Commission.
Posted in Mental Health & CNS on
16 October 2008
Tags:
ECT
Both my parents received numerous ECT treatments in a Cork hospital between 1970's and 2005. I can confirm that they both deteriorated significantly after each ECT treatment - increasing despair and paranoia,inability to feel emotions, inability to relate to others and lonterm memory loss.My mother was highly intelligent but gradually lost all interest in intellectual activites. After her last ECT treatment she lived for a further eight years in a permanent state of ultra paranoia and profound depression. I very much support your efforts to expose the true effect of ECT.
Posted by: Connie Ryan on Tuesday 21 October 2008